I was frustrated this month as he started to get constipated, despite my dilations. I took him into the surgeon where he told me to stop them and just try Miralax. The problems continued and so I set up another appt with a GI Pediatric Dr. He told me how tight his bum hole was and the dilations had to continue! What the heck! It's not easy running to and fro appts, paying co pays, having Levi suffer (and the entire family as well) and then get confusing info. We are back to dilations, praying and just cheering for Levi whenever he does poop now. I was concerned for his diet for a while, especially b/c he doesn't do pureed foods (except yogurt), and he has no teeth to chew. But, Dr was more interested in getting the poop out! I have done my fair share of stool education now and I must say that I am now enlightened and more aware of what should be going in and out of our bodies.
I just hope that his health gets better as he grows older and that this won't be a problem. Let us get through the dirty work NOW so that he can be happy and healthy later!
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